Patient Support Organizations

Allergy & Asthma Network is a leading nonprofit patient outreach, education, advocacy and research organization for people with asthma, allergies and related conditions. Its patient-centered network unites individuals, families, caregivers, health professionals, industry partners and government decision makers to improve health and quality of life. The Network specializes in making medically accurate information understandable to all while promoting evidence-based standards of care.

The American Lung Association is works to save lives by improving lung health and preventing lung disease through Education, Advocacy and Research. For more than 100 years, the American Lung Association has been leading the fight for healthy lungs and healthy air. The American Lung Association was among the first to tackle smoking as the nation’s greatest preventable health risk, and to make the connection between air pollution and lung disease.

APFED is a non-profit organization dedicated to patients and their families coping with eosinophilic gastrointestinal disorders. APFED strives to expand education, create awareness, and support research while promoting advocacy among its members.

Founded in 1953, the Asthma and Allergy Foundation of America (AAFA) is the leading national patient organization for people with asthma and allergies, and the oldest asthma and allergy patient group in the world. AAFA is dedicated to improving the quality of life for people with asthma and allergies — including food allergies and anaphylaxis – and related diseases through education, advocacy, and research.

FAACT’s mission is to educate, advocate, and raise awareness for all individuals and families affected by food allergies and life-threatening anaphylaxis. Whether it’s keeping children safe at school, responding to food allergy bullying, traveling, preparing for college, dealing with workplace issues, or simply taking the family out for dinner, FAACT has the facts you need to manage food allergies and stay healthy.

Food Allergy Research & Education (FARE) works on behalf of the 32 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in 13 children in the United States – or roughly two in every classroom. FARE is a 501(c)(3) nonprofit organization that was formed in 2012 as the result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative.

The Immune Deficiency Foundation (IDF), founded in 1980, is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. On behalf of those with primary immunodeficiency diseases, IDF offers educational programs and materials that offer medical information, important life management and patient care resources, and support for patients and family members. IDF supports advocacy to promote healthcare legislation and policies that positively affect the primary immune deficiency community; and research and medical programs that improve diagnosis and treatment of primary immunodeficiency diseases.

FPIES基金会is a 501c3 non profit organization dedicated to overcoming the challenges of Food Protein-Induced Enterocolitis Syndrome (FPIES) by offering tools for education, support, and advocacy to empower families and the medical community

The Mast Cell Disease Society, Inc., is a nonprofit organization dedicated to providing multifaceted support to patients, families, and medical professionals in our community, and to leading the advancement of knowledge and research in mast cell diseases through education, advocacy and collaboration. We represent all those affected by Cutaneous and Systemic Mastocytosis and their variants, Mast Cell Activation Syndromes, and Hereditary Alpha-Tryptasemia.

The National Association of School Nurses is a non-profit specialty nursing organization, incorporated in 1977, which represents school nurses exclusively. NASN has nearly 15,000 members and 51 affiliates, including the District of Columbia and overseas.

The NOMID alliance is a public charity promoting awareness, proper diagnosis and treatment of people with cryopyrin-associated periodic syndromes (CAPS) and other autoinflammatory syndromes.

HAEA is a non-profit patient advocacy organization dedicated to expediting US approval of safer and more effective HAE therapies. They provide a wide range of services that include clinical trial placement, physician referrals, education, and individualized patient case management.